Connect in Pharma launches art exhibition and charity partnership to raise funds for rare disease research
Geneva-based event pledges five Swiss francs per visitor to support new drug development project
London, UK, 12 July 2022 / Sciad Newswire / The organisers of Connect in Pharma announce today that for every visitor to the Geneva-based event, five Swiss francs will be donated to EspeRare Foundation, a not-for-profit organisation that identifies, develops and promotes access to life-changing treatments and technologies for patients affected by rare diseases.
Connect in Pharma, a new event for the pharmaceutical and biotechnology community taking place 14 & 15 September 2022 in Geneva, will also host the premier of a photography exhibition entitled “Days of Rare”. The exhibition will feature photos and video interviews with individuals who are affected by rare diseases, like 15-year-old Tayen featured in the exhibition poster.
Living with hypohidrotic ectodermal dysplasia—a genetic skin disease that leaves Tayen with a reduced ability to sweat and regulate body temperature—is something she now takes in her stride, but this was not always the case. Tayen says:
“It really did upset me at times, but now they can say what they want. It literally doesn't affect me. I know that they're not bullying me as a person, but they are bullying me because of my condition and that makes me feel slightly better. From having my condition my whole life I've learned as I've got older that actually, it doesn't matter that I'm different. Because we all are different.”
The exhibition is the work of SbD Creative, an award-winning creative agency that specialises in working with people with rare diseases to tell emotive, person-centred storytelling.
Photographer and Director of SbD Creative Ceridwen Hughes and her team created bespoke scenes for each person that aimed to bring in quirky elements of their condition. “Our goal is to take the viewer on a journey that ultimately encourages them to want to know more about the person and the impact of their rare disease,” says Hughes.
Renan Joel, Divisional Director at Connect in Pharma, says:
“We are honoured to be partnering with both EspeRare and SbD Creative to raise funds and awareness for rare diseases. I was so impressed by both these organisations in the way they remind us how research and production of new drugs can make a life-changing difference for individuals in this underserved community.”
In addition to donating five Swiss francs for every attendee that comes through the doors of Connect In Pharma on 14 or 15 September, the event will also provide opportunities for exhibitors, partners and others to learn more about and support EspeRare and its research into treatments for diseases such as Tayen’s rare condition. The organisers aim to raise 20,000 Swiss francs in total and increase awareness of the cause.
The support from Connect in Pharma will “make a very concrete difference,” says EspeRare founder and Executive Director Caroline Kant. “Twenty thousand Swiss francs is the amount we need to initiate early-stage research for a new drug development programme and attract the needed public and philanthropic funding to further progress its development. Ultimately, these funds can have a rippling effect that may be life changing for a whole patient community.”
Kant says she first spotted the stunning work of SbD Creative’s founder Ceridwen Hughes about five years ago and is thrilled to finally work together through Connect in Pharma.
“I cannot imagine better work to exemplify in a visual sense why we are all so committed to these patients,” Kant says.
Kant and Hughes share a dedication that is personal. They are both mothers to children with rare diseases themselves, and they both are rooted in understanding the need to work in collaboration with the rare-disease patient population and their families.
“The beauty of working in rare diseases is that we have the honour of working with these young people and their families, who are all so brave and generous. We at EspeRare are just trying to live up to their strength and dedication.”
Find out more at https://www.connectinpharma.com.
Notes to Editors
Images: Other high resolution images from the Days of Rare exhibition are available. Please contact Sciad Communications, contact details below.
About Connect in Pharma
Connect in Pharma is a fresh and exciting new event for the European pharmaceutical and biotechnology community, taking place in the heart of the market in Geneva.
The event has been launched in answer to feedback from the community to fill a gap in the market to have an event at the centre of the pharma and biotech world, namely Switzerland. It is designed to address the most critical issues and challenges of the industry in a pivotal time for the packaging market, as well as provide a forum for inspiration, learning, collaboration, networking and sourcing.
Find out more about Connect in Pharma, the agenda and exhibitors at https://www.connectinpharma.com/
Easyfairs organises and hosts events, bringing communities together to visit the future.
Easyfairs currently organises 200 face-to-face events in 14 countries (Algeria, Belgium, Denmark, Finland, France, Germany, Italy, the Netherlands, Norway, Portugal, Spain, Sweden, Switzerland and the United Kingdom) and manages eight event venues in Belgium, the Netherlands and Sweden (Antwerp, Ghent, Mechelen, Brussels North, Namur, Gorinchem, Hardenberg, Malmö and Stockholm).
Easyfairs is passionate about “easifying” the life of our customers and increasing the return on investment and return on time for professional communities through our all-in formulas, advanced technology and customer-centric approach. Our digital features and initiatives provide these communities with excellent opportunities to network effectively and do business throughout the year. We listen carefully to create compelling online formats that meet their constantly evolving needs.
The Easyfairs Group employs 600 highly committed talents, deploys the best marketing and technology tools, and develops brands with a strong appeal to our stakeholder communities.
In 2018 Easyfairs was named Belgium’s “Entrepreneur of the Year®” and earned recognition as a Deloitte “Best Managed Company” and a “Great Place to Work”. For the third year running, Deloitte conferred “Best Managed Company” status on Easyfairs in 2021.
The company is ranked 17th in the list of the world’s leading exhibition companies.
Visit the future with Easyfairs and find out more at www.easyfairs.com.
For further information, please contact:
T: +44 (0)20 3196 4365
Melissa Kerschen / Paula Burton / Darya Shulakova
Sciad Communications Ltd
T: +44 (0)20 3405 7892
M: +44 (0)7753 660286 /+44 (0)7921 839596